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Beitrag 186002 von 190630 (98%)

Autor	Ena09
Datum	26.09.13, 20:39
Betreff	Re: lidspalte bei der 1. Prothese ?!

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Hallo,

unsere Tochter hat seit ca. 1,5 Jahren ein Glasauge.

Das erste war noch einwandig und wie du schreibst etwas kleiner. Ich war da auch irgendwie enttäuscht....

Das zweite bekam sie nach ca. 3 Monaten, das war dann zweiwandig und das Auge sah wirklich perfekt aus. Inzwischen hat sie das 5. oder 6 Auge und es ist irgendwie jedesmal anders, je nach dem wie er es beim Anfertigen hinbekommt.
im
Die vorletzte sah von der Größe her sehr gut aus, aber das Auge hat sich nicht ganz geschlossen und war oft entzündet, jetzt hat sie eines dass etwas kleiner ist und es ist besser.
Ich denke das erste wird nie perfekt sein und wichtig ist dass es erstmal "funktioniert" und das Kind wieder ein "normales" Leben führen kann....
Bei unserer Tochter ist es auch so, das sich manche Prothesen leicht bewegen, die jetzige ist aber fast "starr". Und du wirst sehen, bei einem Wachstumschub sieht man manchmal innerhalb ein paar Wochen, dass das Auge zu klein geworden ist.

Mit der Farbe ist es auch so, dass die jedesmal ein bischen anders ist. Ich nehme jetzt zur Neuanfertigung immer ein "altes" Auge mit, das von der Farbe her super war und gebe es als Vorlage.

Ich kann mir vorstellen wie es dir momentan geht. Man steht wochenlang nur unter Schock und versucht alles zu machen damit es seinem Schatz wieder gut geht... Wie kommt ihr mit dem Reinigen klar?
Bei uns war das die ersten Wochen sehr schwierig, aber im laufe der Zeit gings dann...

Bekommt dein Sohn eine Chemo?

Ich wünsche dir ganz viel Kraft.

Viele liebe Grüße


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